Mashawna ThompsonвЂ™s child, Lyra, arrived to the planet with frequently skin that is pale a full mind of nearly-transparent locks. By all measures, she had been breathtaking. Then again Mashawna experienced that minute that most brand new moms and dads fearedвЂ“the medical practioners suspected that one thing ended up being вЂњwrong.вЂќ Eventually, child Lyra had been identified as having albinism.
Many individuals are new to the word вЂњalbinism,вЂќ but most people has been aware of вЂњalbinos.вЂќ And that’s just the tip associated with the iceberg of misunderstandings.
While Lyra, that is now a thriving 9-year-old, has many real challenges because of her condition вЂ” she’s got bad vision, light sensitivity, and delicate epidermis вЂ” the obstacle that is greatest that this household has faced happens to be the variety of misunderstandings that individuals have about albinism.
Based on Mashawna, whom blogs at Parent of a young child With Albinism, вЂњIt really bothers me personally when individuals simply stare, which occurs A LOT. happily, more often than not Lyra canвЂ™t see sufficiently to see them staring so it doesnвЂ™t bother her as much at her. I’d much rather individuals inquire about it than simply stare.вЂќ
She also had a t-shirt created for Lyra that says вЂњI happened to be born along with itвЂќ from the front and вЂњYes, it is realвЂќ in the straight back. вЂњBy far, the essential question that is common hear is вЂIs that her genuine locks color?вЂ™ вЂќ describes Mashawna.
As well as stares and questions regarding LyraвЂ™s locks color, Mashawna has seen the stereotypes that are negative the news as well as the dehumanizing connotations from the term вЂњalbino.вЂќ Mashawna claims that, вЂњOn a occasions that are few other young ones have actually called Lyra a vampire or said вЂAre you a vampire?’вЂќ